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Table 2 Measures for Multi-level Model of Navigator Fidelity

From: A hybrid type I randomized effectiveness-implementation trial of patient navigation to improve access to services for children with autism spectrum disorder

Measure

Tools

Level

Provider Density

Publically available data on certified ASD providers

State

Diagnostic Availability

Publically available data on number of ASD diagnostic centers

State

Characteristics

Organization location, size, and type

Organizational

Organizational Readiness to Change

Organizational Readiness to Change Assessment tool [52]

Organizational

Demographics

Age, race, ethnicity, gender, education, language proficiency

Navigator

Experience with ASD

Question developed by study team

Navigator

Cultural competency

Dogra’s Cultural Awareness Questionnaire [53]

Navigator

Navigator proficiency

Measure developed from Navigator training manual

Navigator

Demographics

Age, race, ethnicity, child’s gender, comorbid conditions, parental education, nativity, English proficiency, access to transportation, insurance

Parent

Parental social support

MOS-Social Support Survey [54]

Parent

Global perceived stress

Perceived Stress Scale- Self Report 14 item [55]

Parent

Parenting stress

Parenting Stress Index 4th edition – Short Form [56]

Parent

Physical/emotional health

Veterans RAND 12 Item Health Survey [57]

Parent

Parental coping strategies

Brief COPE [58]

Parent

Child’s impact on the family

Family Impact Questionnaire [59]

Parent

Parenting stress from ASD

Autism Parenting Stress Index [60]

Parent

Parental perceived mastery

Pearlin Mastery Scale [61]

Parent

Child’s adaptive functioning

Adaptive Behavior Assessment System II [62]

Parent