Measure | Tools | Level |
---|---|---|
Provider Density | Publically available data on certified ASD providers | State |
Diagnostic Availability | Publically available data on number of ASD diagnostic centers | State |
Characteristics | Organization location, size, and type | Organizational |
Organizational Readiness to Change | Organizational Readiness to Change Assessment tool [52] | Organizational |
Demographics | Age, race, ethnicity, gender, education, language proficiency | Navigator |
Experience with ASD | Question developed by study team | Navigator |
Cultural competency | Dogra’s Cultural Awareness Questionnaire [53] | Navigator |
Navigator proficiency | Measure developed from Navigator training manual | Navigator |
Demographics | Age, race, ethnicity, child’s gender, comorbid conditions, parental education, nativity, English proficiency, access to transportation, insurance | Parent |
Parental social support | MOS-Social Support Survey [54] | Parent |
Global perceived stress | Perceived Stress Scale- Self Report 14 item [55] | Parent |
Parenting stress | Parenting Stress Index 4th edition – Short Form [56] | Parent |
Physical/emotional health | Veterans RAND 12 Item Health Survey [57] | Parent |
Parental coping strategies | Brief COPE [58] | Parent |
Child’s impact on the family | Family Impact Questionnaire [59] | Parent |
Parenting stress from ASD | Autism Parenting Stress Index [60] | Parent |
Parental perceived mastery | Pearlin Mastery Scale [61] | Parent |
Child’s adaptive functioning | Adaptive Behavior Assessment System II [62] | Parent |