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Table 2 the approach of cohort participants, by disorder

From: Brain donation in psychiatry: results of a Dutch prospective donor program among psychiatric cohort participants

Disorder Cohort Approached (n) Average age (y) Male Accepted info1 Permission to phone Info2 Registered
SCZ GROUP 39 37 82% n/ab 100% 23% 3%
BD BiG, DIADE 947 53 46% 99% 95% 59% 25%
MDD NESDA, NESDO, ECT 1139 54 31% 90% 84% 37% 9%
OCD AMC regular & DBS, NOCDA 493 48 46% 95% 82% 21% 5%c
PTSD BEPP/EMDR, BioMap, Booster, Paroxetine/CGT, PO 265a 48 52% n/a 57% 16% 6%
Family GROUP, BiG, NESDA 403 61 45% 100% 94% 39% 17%
Control GROUP, BiG, NESDA, NESDO, Booster, DIADE 465 53 39% 92% 88% 32% 8%
Total   3751 53 41% 95% 86% 39% 13%
  1. NESDA = The Netherlands Study of Depression and Anxiety. NESDO = The Netherlands study of Depression in the Elderly. ECT = Depressed patients treated with electroconvulsive therapy. BiG = Bipolar Genetics. DIADE = Diagnostic Imaging of Affective Disorders using Emotion Processing. GROUP = Genetic Risk and Outcome in Psychosis. AMC regular = Patients who had a diagnostic intake or were treated for OCD at the Academic Medical Center in Amsterdam. AMC DBS = Patients with OCD who underwent deep brain stimulation at the AMC. NOCDA = The Netherlands OCD Association Study: identifying risk factors for chronicity in the course of obsessive-compulsive disorder. Booster = The effect of oxytocin on brain activity in police officers. Paroxetine/CGT = Randomized controlled trial ‘the effectiveness of paroxetine versus trauma-focused cognitive behavioral therapy in the treatment of PTSD’. BioMap = The ‘biological markers for PTSD’ study. BEP/EMDR = ‘Effectiveness and efficiency of Eye Movement Desensitization and Reprocessing therapy (EMDR) versus Brief Eclectic Psychotherapy (BEP) in the treatment of PTSD’. PO = Police officers who have been treated for PTSD at the Academic Medical Center
  2. a30% (n = 40) of BEPP/EMDR participants could not be reached by phone, possibly due to outdated contact information
  3. bn/a = non applicable, because info1 was sent by post
  4. cThose treated with Deep Brain Stimulation (n = 10) registered significantly more often (30%)