Table 1 Summary of the measures included in the take a breath cohort study

Parent Distress

Posttraumatic Stress Checklist-Specific Version (PCL-S) [40]

P

*

*

*

Post traumatic growth

Post Traumatic Growth Inventory – Short form [41]

P

*

Child psychopathology

The Brief Infant Toddler Social Emotional Assessment [42], or Strengths and Difficulties Questionnaire (SDQ) [43]

P

*

*

*

Strengths and Difficulties Questionnaire (SDQ) [43]

C

*

*

*

Parent Report of Posttraumatic Stress Symptoms [44]

P

*

*

*

*

Child Report of Posttraumatic Stress Symptoms [44]

C

*

*

*

Child wellbeing

PEDS Quality of Life (6 years+) [45] or TNO-AZL Preschool Children Quality of Life (1–5 years) [46]

P

*

*

*

PEDS Quality of Life [45]

C

*

*

*

Illness variables

Severity of Illness Scale [47]

MD

*

Demographics

General questionnaire of parent demographic information (eg. age, years of education, ethnicity)

P

*

Health Economy

General questionnaire of health economy factors (eg. level of income, services used in the hospital and in the community)

P

*

*

*

*

Psychosocial factors

Psychosocial Assessment Tool (PAT 2.0) [48] (assessing psychosocial risk factors such as family structure, family beliefs, access to services and transport)

P

*

*

*

*

Psychosocial Assessment Tool (PAT-S) [25]

SW

*

*

Parent distress/ wellbeing

Acute Stress Disorder Scale (ASDS) [49]

P

*

Depression Anxiety Stress Scale Short Form (DASS-21) [50]

P

*

*

*

*

Assessment of QoL (AQOL) [51]

P

*

*

*

*

State Trait Anxiety Scale [52]

P

*

Family Functioning

Family Environment Scales [53]

P

*

Experience of Illness

Parent Experience of Child Illness (PECI) [54]

P

*

*

*

Family Management Measure [55]

P

*

*

*

Benefit Burden Scale - Children [56]

C

*

*

*