Table 1 Characteristics of patients (n = 293) and family members (n = 405)
Patient | Count (%) or median [range] |
|---|---|
Age | 39 [0–87] |
Female gender | 112 (38.9) |
Living alone | 38 (19.7) |
Unemployed | 53 (26.4) |
Primary admission to ICU | 108 (37.2) |
Secondary admission to ICU | 180 (62.1) |
Knaus score | 1 [1–4] |
Highest TISS score | 49 [15–80] |
APACHE II within first 24 hours | 20 [2–42] |
Length of stay [days] | 13 [3–242] |
Status at discharge (died) | 28 (9.9) |
- Adult patients (died) | 26 (13.8) |
- Pediatric patients (died) | 2 (2.1) |
Family member | |
Age | 41.5 [16–87] |
Female gender | 289 (71.5) |
Relationship to the patient | |
Spouse | 92 (22.8) |
Parents | 194 (48) |
Siblings | 62 (15.3) |
Other | 30 (7.4) |
Not relative FM | 4 (1) |
Time of transport to the hospital [min] | 40 [10–440] |
Desired number of visits | 7 [2–8] |
Wanted more information about diagnosis | 212 (52) |
Wanted more information about treatment | 214 (53) |
Wanted more information about prognosis | 226 (56) |
Receiving contradictory information | 70 (17.4) |
Length of staff contacts [min] | 10 [1–60] |
Wanted help from psychologist | 110 (27.7) |
Not helped by general practitioner | 258 (64.8) |
Ignoring specific role of health care professionals | 51 (12.6) |
Suitable duration of meeting with ICU staff [min] | 10 [1–60] |
CCFNI score | 20 [14–36] |
Failure to understand (diagnosis AND treatment AND prognosis) | 248 (61.9) |